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Major changes ahead at major Jewish charity

Federations not the only ones seeking to keep donors on board

 
 
 

Sociologist Peter Frumkin, just back from speaking before a Hebrew University conference on philanthropy and public policy in Israel, told The Jewish Standard that the challenges federations are facing are part of a broader social trend: “Disintermediation, removal of the middle man. You see it in financial services” as well as in the charitable world, he noted.

“It’s a huge generational problem,” he said in a telephone interview on Tuesday. “The old-time donors would give unconditionally to the federations and trust the professional managers to make the decision about the highest and best use of philanthropic funds,” said Frumkin, who is professor of public affairs and director of the RGK Center for Philanthropy and Community Service at the Lyndon B. Johnson School of Public Affairs at the University of Texas.

Younger donors, he continued, “want a higher level of engagement,” perhaps serving on an organization’s board. “They also want a sense that they are doing more than just writing checks.”

Community foundations in the secular world are facing the same challenge, he said: “How do you maintain the donor base?”

In the community foundation world, he went on, “there’s been a concerted effort to reinvent the models, making them more centric to the needs of donors.”

He cited the successful Kansas City Community Foundation, which “invented a whole suite of services for donors designed to meet their needs,” as the “poster child for the community foundation world.”

Another universal challenge in the field of philanthropy is that donors want “evidence of impact.” There’s a “heightened sense of attention paid to evaluating results, measuring performance, and reporting on impact.”

This emphasis, he said, “stems from a kind of ethos of investing. You want to have some kind of sense of what the impact and the results [of your investing] are.” But while “the metrics we use to measure financial performance are very precise, the metrics we use to measure philanthropic performance are much less precise.”

It is difficult to measure, for example, whether a donation intended to foster Jewish identity does just that.

A particular challenge for Jewish charities is that younger donors “interpret philanthropy as healing the world,” not necessarily the Jewish world. “Their idea is tikkun olam, helping people and changing the world for the better. They are not so deeply aligned with Israel and Jewish causes” as their elders.

“Now that I’ve been to Israel,” he said in an aside, “I’ve seen the case for [donations to Israel] more clearly. Jewish identity is not exclusively wrapped up in the rituals of the faith. It’s also in this historic identity. You have to have a broad interpretation of what it means to be Jewish and a broader interpretation of what it means to heal the world.”

“The clever federations are reinventing themselves,” said Frumkin. The author of “Strategic Giving” (University of Chicago Press, 2006) — about effective philanthropy and how donors can develop a charitable agenda — he has some suggestions about how to do that.

First, he said, federations should create opportunities to engage and involve donors.

They should “build the tools for evaluation and performance measurement.”

And they should “serve as a vehicle for learning and donor development.”

Those are the three most important things, in Frumkin’s view, that federations can do “to ensure that the next generation of donors remain committed and interested in their work.”

 

More on: Major changes ahead at major Jewish charity

 

“We want to be an organization that is nimble, responsive, fast, not what people perceive as a federation,” said Alan Scharfstein, president of UJA Federation of Northern New Jersey. His words conjured up contrasting images: a sleek racehorse versus an unwieldy, slow-moving mammoth.

And we all know what happened to the mammoths.

To do its work well in an evolving communal landscape, UJA-NNJ must evolve as well, Scharfstein said. In an interview last month at its Paramus offices, he and federation officials outlined sweeping changes, changes designed, he said, “not only to manage funds but to engage the next generation.”

 
 
 
 

 

 

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Kidney donor

My children should see what it means to be a Jew

Need a babysitter, a ride to Manhattan, or a kosher used barbecue grill? TeaneckShuls, a moderated listserv connecting people in the northern New Jersey area, can help you find what you need. Need a kidney? TeaneckShuls can help as well. Ruthie Levi, a moderator for the listserv, reports that “as a result of an e-mail posting on this list for someone seeking a kidney donation, Rabbi Ephraim Simon of Chabad Teaneck has … successfully donated his own kidney.”

“It’s not like I woke up one morning and wanted to donate a kidney,” said Simon, who serves as the Chabad rabbi in Teaneck. “My own children, ages 2 to 14, are my first priority.” He recounted how a woman named Chaya Lipshutz had been posting for years on TeaneckShuls about people who needed kidney donors. “I would read them, and sigh, and go on with my day. I have nine little children and it was not something I would envision doing.” However, one such posting touched him deeply. “In August 2008, [Lipshutz] had a post of a 12-year-old girl — how could I let a 12-year-old girl die? I have a daughter who is 12.”

 

Woodstock

The Jewish connection

This week marks the 40th anniversary of the historic Woodstock Music Festival, which attracted perhaps as many as a half-million, mostly young, concertgoers. The peaceful behavior of festival-goers gave, and still gives, Woodstock the aura of being the tangible affirmation of the “peace and love” ethos of the ’60s hippie “counterculture.” The “good vibes” were preserved for posterity by the best concert film of the ’60s.

As I recall from Hebrew school, the Torah likes the number 40 — 40 years in the desert and so on. So, I guess it is appropriate, on this anniversary, to explore Woodstock’s many Jewish connections.

Let’s put on a show

 

Jewish groups join national debate on health-care reform

Legislators and lobbyists working to push through President Obama’s health-care reforms have sought out the faith community as a voice of moral urgency.

Indeed, the contentious debate over health-care reform facing the country appears to have united Jewish advocacy organizations. While individuals within the Jewish community may not universally accept Obama’s push for reform, the Jewish organizational world is mostly unified in support, said Steve Gutow, president of the Jewish Council for Public Affairs, the umbrella group for the nation’s Jewish Community Relations Councils.

“Social justice is a Jewish imperative,” said Nancy Ratzan, president of the National Council for Jewish Women, during a telephone interview on Monday. “Access to basic health care for everyone, I think, is understood today as a fundamental social-justice issue. The Jewish community is very engaged and very inspired by this opportunity to change policy to ensure that kind of justice for everybody, so it’s not just those who can afford it.”

 

RECENTLYADDED

New hope for patients with cystic fibrosis

Lisa and Steven Yourman and their two teenage children have all the trappings of the typical suburban Jewish family. A ketubah (Jewish marriage contract) and family portraits are displayed prominently on the wall of their split level home, their cat roams around the books, electronics, and other possessions of a busy family life, and a basketball hoop and four cars occupy their driveway. But their Fair Lawn home also has signs of their remarkable challenge: the medical equipment and cartons of medical supplies necessary to care for Sarah and Jeffrey, both of whom have cystic fibrosis.

Cystic fibrosis (CF) is a genetic disease affecting about 30,000 people in the United States. It is more prevalent in Caucasians. The incidence among Ashkenazi Jews is similar to that for Tay-Sachs: About one in 29 Ashkenazi Jews is a carrier. Carriers have no symptoms, but when two carriers have a child there is a one in four chance that the child will have CF.

 

New hope for patients with cystic fibrosis

Israeli scientists take extraordinary measures to conquer CF

The recent film “Extraordinary Measures” tells the real-life tale of a family with two children who are suffering from a fatal genetic disorder. Their father takes drastic steps to encourage and support the work of a brilliant scientist, whose insight leads to a miracle drug that saves the lives of the children. The CF story may have a similar path to a happy ending — with the work of some extraordinary Israeli physicians and researchers leading to a new approach to cure CF.

The CFTR protein is the source of all problems in cystic fibrosis. CFTR stands for cystic fibrosis transmembrane conductance regulator. Its normal function is to move salts across cell membranes throughout the body — a process that is essential to the proper functioning of the lungs, kidneys, pancreas, and other organs, as well as the normal growth and development of the vas deferens, a structure that transports sperm in men.

 

New hope for patients with cystic fibrosis

Clinical trials of Ataluren

To be considered for the clinical study on the new drug Ataluren, originally called PTC124, CF patients “must know their genetic mutation,” said Teaneck resident Dr. Jay Barth, executive director of clinical development at PTC Therapeutics, Inc., the South Plainfield-based company that is beginning Phase III trials for the new drug. Barth, a Teaneck resident, explained that “many patients already know their mutation. If not, they have to have genetic testing.” Patients who carry at least one copy of a nonsense mutation (see below) may qualify. Also, patients must be at least six years of age, and have lung functioning within a certain range.

Cystic fibrosis can be caused by many different forms of mutations in the CFTR gene. The CFTR gene makes a protein that normally handles the movement of salt across membranes and the secretion of fluids and mucous. Since fluid management and mucous play important roles in many critical organs, CF can affect the lungs, liver, pancreas, reproductive structures, and sweat glands.

 

 

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